RESEARCH
3/26/2013
AUCD 2013: You're Invited
Promoting Inclusion in an Increasingly Diverse World
This Conference theme promotes our network values of inclusion of all persons with developmental and other disabilities in community life and engages the network in conversation and practices to ensure our work reflects the changing cultural and linguistic landscape in our Centers and States.
3/26/2013
John Merck Fund Announces 2013 Developmental Disabilities Translational Research Program Guidelines and Application Process
Preliminary Proposal Deadline: May 15, 2013
The John Merck Fund has had a longstanding interest in people with intellectual and developmental disorders since its inception in 1970. In 2012, JMF launched the Developmental Disabilities Translational Research Program, which will support researchers in developing treatments and improving outcomes for individuals with developmental disabilities, particularly Down syndrome and Fragile X syndrome (and FX associated disorders).
10/2/2012
Evidence-based Practice Resource Developed by the AZ IHD UCEDD
The Institute for Human Development at Northern Arizona University has launched a new product called Bridge Briefs: A Research to Practice Resource.
4/17/2012
The Developmental-Behavioral Pediatric (DBP) Long Term Trainees Annual Leadership Meeting
The Developmental-Behavioral Pediatric (DBP) long term trainees Annual Leadership Meeting was held in Providence, Rhode Island from March 28 through March 30, 2012. Activities included fellows presenting their research projects, feedback from faulty on the research projects, small group discussion (ex: How to find your first DBP job), as well as a Symposium on Life Course Trajectory and Advocacy.
10/6/2011
The Institute for Community Inclusion's Ashley Wolfe Is Awarded "Research in Action" Award for Self-Advocate Researchers
The Arc of the United States has awarded the Institute for Community Inclusion's (ICI-Boston) Ashley Wolfe with the 2011 Research in Action award. Wolfe was presented with this for her significant contributions to Participatory Action Research efforts in the field of intellectual and developmental disabilities (I/DD). Her research and work has made her a respected member of the research field and this award is an acknowledgement by her colleagues and peers of her numerous contributions to I/DD research at ICI and Boston University.
9/28/2011
Melanie Fried-Oken, PhD, OR UCEDD, Researches Brain Computer Interface (BCI)
Dr. Melanie Fried-Oken and a clinical translational research team have been working to help develop an efficient and effective brain computer interface (BCI) system for persons with locked-in syndrome that serves as a communication system.
8/18/2009
New Edition of Child Health USA Released by MCHB
Child Health USA 2007 reports on the health status and service needs for the target population of Title V funding: infants, children, adolescents, children with special health care needs, and women of childbearing age.
Inclusion in Research - Documenting Capacity to Consent
This brief document was developed to help researchers develop consent procedures that 1) ensure participants understand study procedures and 2) demonstrate this population has the capacity to consent to research participation.